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    Sheikh Mohammed bin Rashid Al Maktoum Funds Gene Therapy for Jordanian Toddler with SMA

    Section editor: ·Low7 articles covering this·5 news sources·Updated 2 hours ago·UAE
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    Sheikh Mohammed bin Rashid Al Maktoum with Katia Abu Al Saud, highlighting the funding of her Zolgensma gene therapy.

    Here's what it means for you.

    This humanitarian act highlights the growing importance of accessible healthcare solutions in the region.

    What happened

    On August 20, 2026, Sheikh Mohammed bin Rashid Al Maktoum committed to fully funding Zolgensma gene therapy for 16-month-old Katia Abu Al Saud, who suffers from spinal muscular atrophy.

    The Context

    • Spinal muscular atrophy (SMA) is a rare genetic disorder that leads to progressive muscle weakness and can severely impact respiratory function if untreated.
    • Zolgensma, a one-time gene therapy, costs approximately $2.4 million and is often inaccessible in many countries, including Jordan.
    • Sheikh Mohammed's intervention reflects a consistent pattern of humanitarian support for children with rare diseases, reinforcing the UAE's commitment to medical assistance.

    The Number

    $2.4 million

    — This is the full cost of the Zolgensma treatment funded by Sheikh Mohammed, underscoring the financial barriers many families face in accessing life-saving therapies.

    Takeaway

    Expect continued humanitarian efforts from UAE leadership as they respond to medical needs, positioning Dubai as a hub for advanced healthcare solutions.

    7 Articles
    Emirates 24|7

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    The National

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